Crisis Playbook

Dad was just diagnosed with dementia. What's next?

A dementia diagnosis opens a planning window that closes as capacity fades. Here is the sequence — POA, financial inventory, Medicaid planning — that keeps the full menu on the table.

Crisis Playbook — warm impressionist landscape

Dad was just diagnosed with dementia. What's next?

Move fast on documents while he still has legal capacity. Execute (or update) a durable Power of Attorney and health-care directive this month. Inventory assets, debts, and gift history for the last five years. Then consult an elder-law attorney or Certified Medicaid Planner (CMP) — early-stage planning keeps every option open. Late-stage planning closes them one by one.

A dementia diagnosis does not feel like a Medicaid-planning deadline. For the first weeks it feels like appointments and phone calls and trying to keep Dad's Tuesdays normal. But the clock that matters most — the capacity clock — starts running from the day of diagnosis, and the planning window narrows every month. Early-stage planning keeps every option on the menu. Late-stage planning eliminates them one at a time.

The capacity window

Legal capacity is the ability to understand the nature and consequences of a document being signed. Early-stage dementia typically preserves it. Moderate-stage dementia erodes it unevenly — one good morning, three bad afternoons. Late-stage dementia eliminates it. The practical consequence is that every Medicaid planning tool that requires Dad's signature — updating a Power of Attorney (POA), funding a Medicaid Asset Protection Trust (MAPT), executing a caregiver-child agreement, re-titling property to the community spouse — needs to happen while his capacity is still intact.

This is not a theoretical concern. An elder-law attorney who meets a client twice and on the second visit cannot get a clear answer about the purpose of the documents being signed will stop the signing. Ethically, they must. The moment that happens, the family's planning options collapse into guardianship court, which is slower, more expensive, and matters of public record.

The 30-day checklist

Execute a durable Power of Attorney this month. Durable means it survives incapacity, which is the whole point. Ask the drafting attorney for explicit Medicaid-planning authority, gift-making authority carefully bounded, and real-estate authority — a generic financial POA is often too narrow to re-title a home or fund a trust. Pair it with a health-care POA (sometimes called a health-care proxy) and an advance directive.

Inventory everything. Every bank account, brokerage account, retirement account, and life-insurance policy. Every piece of real estate. Every vehicle. Every significant gift made in the last 60 months — Medicaid's five-year lookback reaches that far, and a $20,000 gift to a grandchild two years ago is already a future penalty month at roughly $9,800 per month (2026 US median). The inventory is the raw material for any planner's first recommendations.

Then call. An elder-law attorney or Certified Medicaid Planner (CMP) in Dad's state is the right call — not the hospital social worker, not a generalist financial advisor. The first consultation answers whether early-stage moves (MAPT, gifting program, spend-down sequencing) make sense given the likely care trajectory, and what the state's specific penalty divisor and Community Spouse Resource Allowance (CSRA) look like.

Why early planning beats crisis planning

The Medicaid Asset Protection Trust is the clearest example of why. A MAPT funded today with countable assets starts a five-year lookback clock. On day 1,827, those assets are fully outside Medicaid's reach. On day 100, they are fully inside it. The trust is the same trust on both days — the only variable is time. Early-stage dementia typically comes with a 5-10 year window before institutional care becomes likely, which means the trust has runway. A crisis admission three years from now triggers the lookback without the trust; the same admission eight years from now finds the trust fully seasoned.

The same logic applies to home protection, gifting programs, and caregiver-child agreements. Each one trades time for eligibility. The earlier the family starts, the more protection the math delivers.

What to do before the next appointment

Gather the last 60 months of statements. List every gift. List every deed. Find the safety-deposit-box key. Find the long-term-care insurance policy if one exists. Then read the crisis playbook, because the 30-day plan for a sudden admission works just as well for a planned one — and a dementia family is eventually going to use it.

Next

Every Medicaid planning tool — trusts, asset transfers, POA-driven re-titling, caregiver contracts — requires the applicant to sign documents with legal capacity. Once dementia progresses past the threshold where he can understand what he is signing, the family's options narrow to court-supervised guardianship, which is slower, more expensive, and publicly documented.
A durable Power of Attorney (POA) — durable meaning it stays in force after the principal loses capacity. A standard POA terminates at incapacity, which is the exact moment it becomes necessary. Ask the attorney for explicit Medicaid-planning authority, gift-making authority (carefully drafted), and real-estate authority. A bare-bones financial POA will not do the work.
If the diagnosis is early-stage and nursing-home care is 5+ years away, a Medicaid Asset Protection Trust (MAPT) can move countable assets outside the lookback. If institutional care is likely inside 60 months, the trust's five-year clock has not started and the money sits exposed. Timing, not the trust itself, is what makes MAPTs work.
Then the family moves to guardianship or conservatorship in probate court. A judge assigns decision authority over finances and health. Guardianships run $3,000-$10,000 to establish and create ongoing reporting duties, but they do unlock Medicaid planning moves that would otherwise be unreachable.
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Crisis Playbook

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